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Table 3 Programs targeted to family of people with mental illness

From: Review of Australian initiatives to reduce stigma towards people with complex mental illness: what exists and what works?

Program name Organisation Type of mental illness Description Anti-stigma component Lived experience involvement Session length, facilitated by Where provided Duration and reach Funding Level of evidence
Family and friends group BPD Community Borderline Personality Disorder A group for carers to provide support and psychoeducation. Groups aim to share and learn how to support each other; to actively seek education and training to improve our relationships with our loved ones; to help ourselves and others; to create a safe environment; to reduce our sense of isolation; to accept our individual and joint responsibility to this purpose Contact: Groups are spent sharing stories over the month
Education: One hour of the meeting is devoted to learning about relevant topics
Protest/advocacy: The group provides the opportunity for individuals to build their own advocacy. It also provides the organisation with the capacity to speak on the behalf of participants
Program is designed and developed by carers with LE 2.5 h once a month, facilitated two carers VIC, metro Since 2015, 167 Volunteers Unclear
Journey to Recovery [35,36,37,38] St Vincent’s Mental Health Service Psychosis Psychoeducation group program in a public adult mental health service for the families and friends of people experiencing early psychosis Education: Provide support and information to assist coping and reduce isolation. Topics include What is psychosis, Recovering from psychosis, Medications, Early warning signs (relapse prevention), Community resources None reported 5 × 2-h sessions. Inpatient version is a single session. Facilitated by early psychosis senior clinicians VIC, metro Since 2009, N/R State gov 3
Kookaburra Kids Camps and Activity Days Australian Kookaburra Kids Foundation Mental illness (non-specific) Therapeutic recreation camps and activities for children who are living with a family member affected by mental illness Education: Psychoeducation and basic coping skill-building is embedded into programs in a supported peer-group format to promote mental health literacy (including addressing misconceptions and myths about mental illness) and appropriate help-seeking Designed by person with LE, co-design committee initiated in 2019. Delivery includes volunteers with LE 2 × 1-h groups at camps; 15 min psycho-ed and activity at Activity Day. Facilitated by trained staff ACT, NSW, NT, QLD, SA, VIC. Metro, regional/rural More than 10 years, 3,000 +  Govt, donations and corporate / other sponsorships Unclear
  1. 1 = No evaluation evidence, 2 = Post survey feedback or qualitative interviews, 3 = One or more uncontrolled trials or repeated cross-sectional surveys, 4 = One or more controlled trials, 5 = One or more randomised controlled trials
  2. LELived Experience, N/R Not Reported