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Table 6 Online resources accessible to the public

From: Review of Australian initiatives to reduce stigma towards people with complex mental illness: what exists and what works?

Online resource name Organisation Type of mental illness Year Target audience Online resource description Anti-stigma component Lived experience involvement Reach Funding Level of evidence
All in the Mind with Lynne Malcolm [65,66,67,68,69,70,71] ABC Range of disorders including bipolar disorder, borderline personality disorder, psychosis, and schizophrenia 2006 - General population A radio program that uses stories to explore the mind, brain, and behaviour. Several episodes have focused on mental illness and featured stories from people with lived experiences, as well as information from experts about treatments and recovery Contact: Features stories from consumers and carers about their lived experiences and recovery
Education: Featured guests include health educators and professionals who provide expert information and opinions about presentation, treatment and recovery
Consumers and carers with lived experiences are featured guests N/R Commonwealth gov 1
Bipolar Caregivers
[72]
Private
(Lesley Berk)
Bipolar disorder 2010 Carers of people with a mental illness A website with online information for caregivers of people with bipolar disorder Education: Evidence-based information and suggestions for caregivers about bipolar, its treatment and management, helping someone with bipolar, carer self-care, dealing with stigma or discrimination, and assisting someone dealing with stigma Expert caregivers and people with bipolar disorder were consulted and informed evidence-based information featured on the website N/R NHMRC PhD scholarship funded 1
BPD Webinar Series [73] Australian BPD Foundation, Spectrum, MHPN Borderline personality disorder 2017 Health professionals A six-part webinar series that features an expert panel of consumers, carers, and health professionals discussing their knowledge and experiences of borderline personality disorder and related topics Contact: Panel members with lived experience provides knowledge and insight
Education: Topics discussed by expert panel include information about BPD, treatment principles, evidence-based treatments and access, BPD in youth and early intervention, management of self-injury and suicidality, and management of BPD in Mental Health Services in Primary, Public, and Private Sectors
Consumers and carers with lived experiences are featured on expert panel N/R Commonwealth gov 2
Consumers and Carers as Educators [74] Lived Experience Australia Mental illness (non-specific) 2015 Health professionals Several online training modules to inform and support health professionals Contact: Features videos of interviews with consumers and carers
Education: Features modules provide practical guidance on how to involve consumers and carers in meaningful ways into patient centred care models
Organisation comprises of people with lived experience as consumers and carers N/R Some funding from Mind Australia and RANZCP SA Trainees 1
Earshot [75] ABC Bipolar disorder 2015 General population A radio program that presents a diverse selection of documentaries from intimate portraits to contemporary issues Contact. One episode in the program features three people share their personal stories of bipolar disorder and bipolar mania to raise awareness People with LE share their stories N/R Commonwealth gov 1
The Feed [76, 77] SBS Psychosis 2018 General population A news, current affairs, and satire television series featuring two episodes interviewing people with lived experiences Contact: One episode features a woman sharing her experience of post-natal psychosis to raises awareness of the stigma mothers with mental illness experience. Another episode features Osher Günsberg sharing his mental health experiences People with LE share their stories 1,719,000 + views on Facebook
25,639 views on Youtube
Commonwealth gov 1
‘Let’s Talk’ podcast series [78] Centre for Rural & Remote Mental Health Severe mental illness including bipolar disorder, borderline personality disorder, and schizophrenia 2017 General population, people with lived experiences, rural and remote populations A podcast series about mental health in rural and regional Australia Contact and education: One episode has a focus on low prevalence mental illnesses featuring input from a person with lived experience and two professionals. It specifically addresses misconceptions, service provision in rural and remote Australia, treatment, and community engagement The podcast was produced by a person with LE N/R University of Newcastle’s Centre for Rural and Remote Mental Health 1
Postnatal psychosis recovery stories [79] PANDA Postnatal psychosis N/R General population A website featuring people’s stories about their lived experience of mental illness Contact: Features online stories of mother’s lived experiences of postnatal psychosis including onset, treatment, management and recovery. Stories encourage knowledge and awareness of the potential for recovery People with LE share their personal stories N/R N/R 1
Project Air Strategy website [80, 81] Project Air Strategy Personality disorders N/R Health professionals and people with lived experiences A website with text and video stories of people’s lived experiences of personality disorders Contact. Online text entries and videos featuring people’s stories of living with personality disorders including their day-to-day including parenting, diagnosis, self-help, treatment and recovery journeys
Education: Features videos of health professionals and educators discussing treatment and stigma
People with LE share their stories Personal stories amassed 2,881 views on Youtube N/R 1
Recovery stories [82] Neami National Mental illness (non-specific) N/R General population A website featuring people’s stories about their mental health journeys, including help-seeking and recovery Contact: Features six people’s stories of recovery, including their positive experiences of support and formal service use People with LE share their personal stories N/R N/R 1
SANE Forums [83, 84] SANE Australia Complex mental illness including bipolar disorder, psychotic illness, and bipolar disorder 2014 People with lived experiences (e.g., consumers, families, and carers) Online peer-to-peer support for people living with mental illness and for carers Contact: Provides a supportive online environment free of stigma for people to exchanges personal stories, seek opinions and similar experiences, discuss information and advice People with LE respond to posts by others, provide active, helpful peer support to one another. Videos promoting SANE forums delivered by people with LE N/R Commonwealth gov 2
Say no to stigma! [85,86,87,88,89] SANE Australia Mental illness (non-specific) 2013 General population A Youtube video campaign featuring people with lived experiences share their insight to tackle stigma in the general population Contact: Videos feature people with lived experiences explain the impact of stigma and prejudice on their lives People with LE share their insight 65,294 views on Youtube Australian government, Department of Health and Ageing’s National Suicide Prevention Program 1
Social anxiety, stigma and early psychosis webinar [90] Orygen Psychosis, social anxiety 2017 Health professionals An online training resource that informs clinicians, who work with young people, about social anxiety, stigma and early psychosis Education: Features research evidence on service users’ perspectives of stigma, and explores the relationship between social anxiety, paranoid symptoms, negative beliefs about the self and the experience of shame. It also features research on treatment approaches for young people with social anxiety and early psychosis N/R N/R N/R 1
Thriving Communities [91] SANE Australia Mental illness (non-specific) 2016 General population, people with lived experiences and rural and remote populations A 14-week television, radio and online campaign to raise awareness of the benefits of online peer support and social connection for people affected by complex mental illness Contact: Campaign features nine real-life stories of people affected by complex mental illness, including stories of living with bipolar, schizophrenia, and borderline personality disorder People with LE share their personal stories Reached 155 locations nationally, online stories amassed 66,938 views on Youtube Commonwealth gov 2
Voices Vic Unplugged [92] Uniting Prahran Schizophrenia 2014 General population, people with lived experiences A series of short films produced to reduce the extreme stigma experienced by people who hear voices Contact: Videos feature real and personal stories from people about their experiences of hearing voices, and support, management and recovery Peer-run campaign, videos directed by people with LE 7,317 views on Youtube N/R 1
Website [93] Australian Genetics of Bipolar Disorder Study Bipolar disorder 2018 People with a mental illness A website featuring people’s stories about their experiences of bipolar disorder Contact: Features people’s stories of living with bipolar disorder, including treatment, management and recovery People with LE share their personal stories N/R N/R 1
Website [94] Borderline in the ACT Borderline personality disorder 2017 General population, people with lived experiences, professionals (social service and welfare, health and emergency service), health professional students A website to assist people with lived experiences and services providers find local services in the ACT and surrounding area. It also features evidence-based information Contact: Features videos of people sharing their experiences of living with and managing BPD symptoms in their daily lives. Such videos highlight the complexities of BPD and stigma of BPD in the general population
Education: Features support and local services information to help people assist those with BPD, and myth-busting to reduce stigma and foster empathy towards people with BPD
People with lived experiences were consulted on the design of the website, provide feedback on content and suggestions on supports and resources 10,000 + website visits ACT health fund 2
#WeSpeakUp Campaign [95] Consumers of Mental Health WA and Neami National collaboration Mental illness (non-specific) 2019 General population A series of videos featuring 13 West Australians with a lived experience of challenges with mental health and suicide Contact: Videos feature people with LE share their stories of recognition, recovery and wellbeing to increase awareness of mental health issues and reduce stigma People with LE share their stories 2,252 views on Youtube Neami National 1
You Can’t Ask That [96] ABC Schizophrenia 2018 General population A documentary program in which each episode asks controversial questions, sourced from the public, to a minority Australian population Contact: One episode features eight Australians offer insight and break down stereotypes about living with schizophrenia People with LE share their insight 65,750 views on Facebook Commonwealth gov 1
  1. 1 = No evaluation evidence, 2 = Post survey feedback or qualitative interviews, 3 = One or more uncontrolled trials or repeated cross-sectional surveys, 4 = One or more controlled trials, 5 = One or more randomised controlled trials
  2. LE Lived Experience, N/R Not Reported