Table 6 Online resources accessible to the public
Online resource name | Organisation | Type of mental illness | Year | Target audience | Online resource description | Anti-stigma component | Lived experience involvement | Reach | Funding | Level of evidence |
|---|---|---|---|---|---|---|---|---|---|---|
ABC | Range of disorders including bipolar disorder, borderline personality disorder, psychosis, and schizophrenia | 2006 - | General population | A radio program that uses stories to explore the mind, brain, and behaviour. Several episodes have focused on mental illness and featured stories from people with lived experiences, as well as information from experts about treatments and recovery | Contact: Features stories from consumers and carers about their lived experiences and recovery Education: Featured guests include health educators and professionals who provide expert information and opinions about presentation, treatment and recovery | Consumers and carers with lived experiences are featured guests | N/R | Commonwealth gov | 1 | |
Bipolar Caregivers [72] | Private (Lesley Berk) | Bipolar disorder | 2010 | Carers of people with a mental illness | A website with online information for caregivers of people with bipolar disorder | Education: Evidence-based information and suggestions for caregivers about bipolar, its treatment and management, helping someone with bipolar, carer self-care, dealing with stigma or discrimination, and assisting someone dealing with stigma | Expert caregivers and people with bipolar disorder were consulted and informed evidence-based information featured on the website | N/R | NHMRC PhD scholarship funded | 1 |
BPD Webinar Series [73] | Australian BPD Foundation, Spectrum, MHPN | Borderline personality disorder | 2017 | Health professionals | A six-part webinar series that features an expert panel of consumers, carers, and health professionals discussing their knowledge and experiences of borderline personality disorder and related topics | Contact: Panel members with lived experience provides knowledge and insight Education: Topics discussed by expert panel include information about BPD, treatment principles, evidence-based treatments and access, BPD in youth and early intervention, management of self-injury and suicidality, and management of BPD in Mental Health Services in Primary, Public, and Private Sectors | Consumers and carers with lived experiences are featured on expert panel | N/R | Commonwealth gov | 2 |
Consumers and Carers as Educators [74] | Lived Experience Australia | Mental illness (non-specific) | 2015 | Health professionals | Several online training modules to inform and support health professionals | Contact: Features videos of interviews with consumers and carers Education: Features modules provide practical guidance on how to involve consumers and carers in meaningful ways into patient centred care models | Organisation comprises of people with lived experience as consumers and carers | N/R | Some funding from Mind Australia and RANZCP SA Trainees | 1 |
Earshot [75] | ABC | Bipolar disorder | 2015 | General population | A radio program that presents a diverse selection of documentaries from intimate portraits to contemporary issues | Contact. One episode in the program features three people share their personal stories of bipolar disorder and bipolar mania to raise awareness | People with LE share their stories | N/R | Commonwealth gov | 1 |
SBS | Psychosis | 2018 | General population | A news, current affairs, and satire television series featuring two episodes interviewing people with lived experiences | Contact: One episode features a woman sharing her experience of post-natal psychosis to raises awareness of the stigma mothers with mental illness experience. Another episode features Osher Günsberg sharing his mental health experiences | People with LE share their stories | 1,719,000 + views on Facebook 25,639 views on Youtube | Commonwealth gov | 1 | |
‘Let’s Talk’ podcast series [78] | Centre for Rural & Remote Mental Health | Severe mental illness including bipolar disorder, borderline personality disorder, and schizophrenia | 2017 | General population, people with lived experiences, rural and remote populations | A podcast series about mental health in rural and regional Australia | Contact and education: One episode has a focus on low prevalence mental illnesses featuring input from a person with lived experience and two professionals. It specifically addresses misconceptions, service provision in rural and remote Australia, treatment, and community engagement | The podcast was produced by a person with LE | N/R | University of Newcastle’s Centre for Rural and Remote Mental Health | 1 |
Postnatal psychosis recovery stories [79] | PANDA | Postnatal psychosis | N/R | General population | A website featuring people’s stories about their lived experience of mental illness | Contact: Features online stories of mother’s lived experiences of postnatal psychosis including onset, treatment, management and recovery. Stories encourage knowledge and awareness of the potential for recovery | People with LE share their personal stories | N/R | N/R | 1 |
Project Air Strategy | Personality disorders | N/R | Health professionals and people with lived experiences | A website with text and video stories of people’s lived experiences of personality disorders | Contact. Online text entries and videos featuring people’s stories of living with personality disorders including their day-to-day including parenting, diagnosis, self-help, treatment and recovery journeys Education: Features videos of health professionals and educators discussing treatment and stigma | People with LE share their stories | Personal stories amassed 2,881 views on Youtube | N/R | 1 | |
Recovery stories [82] | Neami National | Mental illness (non-specific) | N/R | General population | A website featuring people’s stories about their mental health journeys, including help-seeking and recovery | Contact: Features six people’s stories of recovery, including their positive experiences of support and formal service use | People with LE share their personal stories | N/R | N/R | 1 |
SANE Australia | Complex mental illness including bipolar disorder, psychotic illness, and bipolar disorder | 2014 | People with lived experiences (e.g., consumers, families, and carers) | Online peer-to-peer support for people living with mental illness and for carers | Contact: Provides a supportive online environment free of stigma for people to exchanges personal stories, seek opinions and similar experiences, discuss information and advice | People with LE respond to posts by others, provide active, helpful peer support to one another. Videos promoting SANE forums delivered by people with LE | N/R | Commonwealth gov | 2 | |
SANE Australia | Mental illness (non-specific) | 2013 | General population | A Youtube video campaign featuring people with lived experiences share their insight to tackle stigma in the general population | Contact: Videos feature people with lived experiences explain the impact of stigma and prejudice on their lives | People with LE share their insight | 65,294 views on Youtube | Australian government, Department of Health and Ageing’s National Suicide Prevention Program | 1 | |
Social anxiety, stigma and early psychosis webinar [90] | Orygen | Psychosis, social anxiety | 2017 | Health professionals | An online training resource that informs clinicians, who work with young people, about social anxiety, stigma and early psychosis | Education: Features research evidence on service users’ perspectives of stigma, and explores the relationship between social anxiety, paranoid symptoms, negative beliefs about the self and the experience of shame. It also features research on treatment approaches for young people with social anxiety and early psychosis | N/R | N/R | N/R | 1 |
Thriving Communities [91] | SANE Australia | Mental illness (non-specific) | 2016 | General population, people with lived experiences and rural and remote populations | A 14-week television, radio and online campaign to raise awareness of the benefits of online peer support and social connection for people affected by complex mental illness | Contact: Campaign features nine real-life stories of people affected by complex mental illness, including stories of living with bipolar, schizophrenia, and borderline personality disorder | People with LE share their personal stories | Reached 155 locations nationally, online stories amassed 66,938 views on Youtube | Commonwealth gov | 2 |
Voices Vic Unplugged [92] | Uniting Prahran | Schizophrenia | 2014 | General population, people with lived experiences | A series of short films produced to reduce the extreme stigma experienced by people who hear voices | Contact: Videos feature real and personal stories from people about their experiences of hearing voices, and support, management and recovery | Peer-run campaign, videos directed by people with LE | 7,317 views on Youtube | N/R | 1 |
Website [93] | Australian Genetics of Bipolar Disorder Study | Bipolar disorder | 2018 | People with a mental illness | A website featuring people’s stories about their experiences of bipolar disorder | Contact: Features people’s stories of living with bipolar disorder, including treatment, management and recovery | People with LE share their personal stories | N/R | N/R | 1 |
Website [94] | Borderline in the ACT | Borderline personality disorder | 2017 | General population, people with lived experiences, professionals (social service and welfare, health and emergency service), health professional students | A website to assist people with lived experiences and services providers find local services in the ACT and surrounding area. It also features evidence-based information | Contact: Features videos of people sharing their experiences of living with and managing BPD symptoms in their daily lives. Such videos highlight the complexities of BPD and stigma of BPD in the general population Education: Features support and local services information to help people assist those with BPD, and myth-busting to reduce stigma and foster empathy towards people with BPD | People with lived experiences were consulted on the design of the website, provide feedback on content and suggestions on supports and resources | 10,000 + website visits | ACT health fund | 2 |
#WeSpeakUp Campaign [95] | Consumers of Mental Health WA and Neami National collaboration | Mental illness (non-specific) | 2019 | General population | A series of videos featuring 13 West Australians with a lived experience of challenges with mental health and suicide | Contact: Videos feature people with LE share their stories of recognition, recovery and wellbeing to increase awareness of mental health issues and reduce stigma | People with LE share their stories | 2,252 views on Youtube | Neami National | 1 |
You Can’t Ask That [96] | ABC | Schizophrenia | 2018 | General population | A documentary program in which each episode asks controversial questions, sourced from the public, to a minority Australian population | Contact: One episode features eight Australians offer insight and break down stereotypes about living with schizophrenia | People with LE share their insight | 65,750 views on Facebook | Commonwealth gov | 1 |