Table 4 Main themes identified from service user and family member interviews

Desired Outcomes When Seeking Help

 Having MSD(V) issues improve

 Understanding MSD(V) issues better

 Feeling/being “normal”

 Addressing practical needs

 Improving social relationships

Ways to Improve Services/Systems

 (a) Types of services and how they are provided

  Being listened to, not judged and treated with respect

  Availability of peer support and help from people who have lived experience

  Appropriate use of medications and related support

  Recreation activities

  Assistance with practical needs

 (b) Broad system of care

  Coordinated holistic care and help navigating the system

  More accessible publicly funded services

  Early intervention

 (c) System issues specifically of concern to family members

  A system that supports greater involvement of family members

  Mechanisms for treatment compliance